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Joined: 4/24/2013 Posts: 703 Location: Hexham
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2 hours this time. Jeez the fatigue - it's enough to drive you round then bend isn't it? In some respects it's the worst aspect of the disease because, no matter how well you get the other symptoms under control, the fatigue is there waiting to get you! Aaaargh! Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
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Rank: Advanced Member
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Joined: 12/4/2009 Posts: 242
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I fully empathise with you Paul. The fatigue is crippling me more than the R.A pain at the moment. I feel so exhausted by doing nothing, any small tasks leave me wasted. Anyone got anything for energy please?
Now ready for more sleep zzzzzz
Rebecca
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Joined: 7/20/2012 Posts: 25 Location: Maidenhead
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I'm with you here, everyday I sleep between and hour to two hours purely because of fatigue, it's horrid. Luckily my little girl still has a lunchtime sleep. Not sure how I'll cope when she grows out of them!
Natalie 😊 xx
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Joined: 3/8/2013 Posts: 144 Location: Dumfries
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Paul I'm totally with you on that and the fact it just comes out of nowhere is very frustrating. I hate the guilt too especially if it has been a nice sunny day - what a waste. It doesn't help if you like me cannot remember the last time I had an unbroken sleep....grrh
Lisa
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Joined: 12/13/2010 Posts: 118 Location: Shrivenham, Oxfordshire
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Natalie I was worried about that when my son dropped his nap (he's now 4). I have got round it by cutting up an apple and putting in a plastic bowl and we take it upstairs. He sits in bed next to me eating his apple watching CBeebies while I have a sleep. I can usually get an hour like this and on a few occasions I have had 2. He gets really upset now if we can't do that together. Becky
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Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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fatigue is the biggie for me too,
although i don't nap in the day, but i do relax on the bed sometime's after lunch and read or watch tele if i'm not going out,
Suzanne
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Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello totally agree fatigue is huge, I have a rest/sleep everyday in the afternoons for approximately am .hour I think it is the worse part. Like trudging through mud
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Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Trudging through mud is spot on, Rose!!
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Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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Today my 'mud trudging' has lasted all day. Woke at 9:50, was back in bed by 10:20 for a 'short' doze. Up at 11:30. Zombie like around the house, lay down for a dose at 2PM and have only just got up again. And I could cheerfully lay my head down again. Bit of pain peak just now too so popping codeine and paracetamol. Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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sorry to hear you're suffering so badly with the fatigue,
it's one that there is no magic pill for i feel,
do you sleep well in the night after such long naps?
Suzanne
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suzanne_p wrote:do you sleep well in the night after such long naps?
Suzanne I am about to find out. I have been yawning all evening but there's just a chance that when my head hits the pillow I shall wake up Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
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Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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Paul Barrett wrote:suzanne_p wrote:do you sleep well in the night after such long naps?
Suzanne I am about to find out. I have been yawning all evening but there's just a chance that when my head hits the pillow I shall wake up Slept like a baby - all night! :) Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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that's good,
i've never been a good sleeper so i'm used to it .. but i do have better night's than others.
Suzanne
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Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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Yes, although I think I managed to be asleep for 18 hours out of 24!. Still I have learned to accept it for what it is; worrying about it just seems to make it worse. If only it weren't so unpredictable. Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
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Rank: Advanced Member  Groups: Registered
Joined: 12/6/2009 Posts: 177
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I'm with you all on the fatigue! I sleep like i'm in a coma in the mornings and just can't get up early however hard i try. If i do manage it on the odd occasion i end up going back to bed. It's a real nuisance and seems to be a big issue with all us RA's.
I think we just have to accept it as we do with all the other issues with the illness, otherwise it leads to more frustration and depression.
Shirley
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Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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Yes - I have accepted it as a regular feature of the condition. It seems to persist regardless of the relative severity of the underlying RA. It used to be irregular but now has become an almost daily feature. Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
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Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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I needed a 2 hour nap this morning and another 2 hour one this afternoon. And I had to force myself out of bed or this afternoon's would have still been going on! Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
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Joined: 12/3/2009 Posts: 302 Location: Rainham Kent
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Being totally facetious Paul, it may be due to your age!!!!! We females get that answer for any conditions from big toe nails to colour of hair on our heads. It must be very frustrating for you. ................. Have you got any further with looking at scooters? I hope to start using mine again after seeing the surgeon on Monday as follow up from elbow replacement Looking forward to independence for window shopping etc!!! Anne
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Joined: 4/24/2013 Posts: 703 Location: Hexham
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Hi Anne On a bad day my 85 year old father-in-law could outrun me. And, actually, the scooter enquiries were on his behalf as he is coming to live with us back end of Feb as he's had a couple of health scares that mean he shouldn't be living alone. I must say that I am tempted though. We borrowed one at a National Trust Property recently when F-I-L was visiting and, for a while when he wanted to walk I drove it. Very nice. I wonder if you can get tandem ones?  - Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
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Rank: Advanced Member
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Joined: 12/3/2009 Posts: 302 Location: Rainham Kent
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How about a sidecar? Anne.
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